Will, 9, with his family

Your Family and Dravet Syndrome

Families of children with Dravet syndrome are some of the strongest families. But we understand that when you have a child diagnosed with Dravet syndrome, it takes a toll on everyone. Caring for your child with Dravet syndrome becomes the priority. It’s understandable for other people or things to sometimes get less of your attention.

Your Family and Dravet Syndrome

Families of children with Dravet syndrome are some of the strongest families. But we understand that when you have a child diagnosed with Dravet syndrome, it takes a toll on everyone. Caring for your child with Dravet syndrome becomes the priority. It’s understandable for other people or things to sometimes get less of your attention.

Will, 9, with his family

Matias, 5, with his family

The Impact of Dravet Syndrome on Families

Many parents and caregivers report having to make changes to their daily lives, which can even impact their income. This includes taking time off from work or school, or even spending less time with their close friends and family. This can often leave parents, caregivers, and siblings feeling isolated, which could make it hard for them to manage their emotions. It’s normal for parents and caregivers to sometimes feel discouraged, down, nervous, or even anxious when trying to provide the best for their child.

But when families work together to support each other’s individual needs, life with Dravet syndrome can become more manageable.

Learn more about the impact Dravet syndrome can have on families.

Shine Forward With Families Just Like Yours

It’s important to remember you aren’t going through this alone. There are other families going through a similar struggle. The Dravet Syndrome Foundation Family Network offers a community of support for parents and caregivers of children of all ages and adults with Dravet syndrome.

Learn more