Inspiring Families to Keep Moving Forward With Dravet Syndrome
Living with Dravet syndrome is challenging. We’re here to provide resources that may help your family with some of these challenges. From assisting parents to diagnosed children and their siblings, we hope to make life with Dravet syndrome a little easier for every member of the family.
Get support and inspiration sent directly to you from Shine Forward With Dravet.
Inspiring Families to Keep Moving Forward With Dravet Syndrome
Living with Dravet syndrome is challenging. We’re here to provide resources that may help your family with some of these challenges. From assisting parents to diagnosed children and their siblings, we hope to make life with Dravet syndrome a little easier for every member of the family.
Get support and inspiration sent directly to you from Shine Forward With Dravet.
Daily Sibling Support
Express your Gratitude
Letting your child know how much you appreciate every little way they help out can be meaningful. That’s because it can make your child feel recognized and important! Giving your child something that feels more official, like a thank you letter or badge of honor, could go a long way, too.
Today’s Tip From Other Caregivers Like You
Live Life in the Moment
When your child has a misstep or setback in their learning, it can be emotional and hard to accept. Sometimes seizures can cause a child to forget something they might have already learned. In this situation, it can help to stay positive. Think about how strong your child is. It’s important to celebrate every win they accomplish each day.
Find out about fun activities other parents
and caregivers are doing with their child
with Dravet syndrome
Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet
Find out about fun activities other parents
and caregivers are doing with their child
with Dravet syndrome
Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet