Will, 9, with his dad

Inspiring Families to Keep Moving Forward With Dravet Syndrome

Living with Dravet syndrome is challenging. We’re here to provide resources that may help your family with some of these challenges. From assisting parents to diagnosed children and their siblings, we hope to make life with Dravet syndrome a little easier for every member of the family.

Get support and inspiration sent directly to you from Shine Forward With Dravet.

Inspiring Families to Keep Moving Forward With Dravet Syndrome

Living with Dravet syndrome is challenging. We’re here to provide resources that may help your family with some of these challenges. From assisting parents to diagnosed children and their siblings, we hope to make life with Dravet syndrome a little easier for every member of the family.

Get support and inspiration sent directly to you from Shine Forward With Dravet.

Will, 9, with his dad
A child with Dravet syndrome walking with his brother and sister
Matias, 5, with his brother and sister

Daily Sibling Support

Express your Gratitude

Letting your child know how much you appreciate every little way they help out can be meaningful. That’s because it can make your child feel recognized and important! Giving your child something that feels more official, like a thank you letter or badge of honor, could go a long way, too.   

A child with Dravet syndrome being held by his mother on the porch
Matias, 5, with his mom

Today’s Tip From Other Caregivers Like You

Live Life in the Moment

When your child has a misstep or setback in their learning, it can be emotional and hard to accept. Sometimes seizures can cause a child to forget something they might have already learned. In this situation, it can help to stay positive. Think about how strong your child is. It’s important to celebrate every win they accomplish each day.

Find out about fun activities other parents
and caregivers are doing with their child
with Dravet syndrome

Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet

Find out about fun activities other parents
and caregivers are doing with their child
with Dravet syndrome

Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet

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