Plan the Conversation
Is there a place or an object that makes your child feel especially safe? Think about when and where your child will feel the most comfortable. Then come up with a plan for how you’re going to say what you need to say. Having something written out in advance will help you feel more prepared. Here are some conversation starters:
- “How do you feel about your brother or sister with Dravet syndrome?”
- “Can you draw how you are feeling today?”
- “It’s OK for you to feel the way you feel. Let me tell you a story about a time I felt the same way.”