Inspiring Families to Keep Moving Forward With Dravet Syndrome
Living with Dravet syndrome is challenging. We’re here to provide resources that may help your family with some of these challenges. From assisting parents to diagnosed children and their siblings, we hope to make life with Dravet syndrome a little easier for every member of the family.
Get support and inspiration sent directly to you from Shine Forward With Dravet.
Inspiring Families to Keep Moving Forward With Dravet Syndrome
Living with Dravet syndrome is challenging. We’re here to provide resources that may help your family with some of these challenges. From assisting parents to diagnosed children and their siblings, we hope to make life with Dravet syndrome a little easier for every member of the family.
Get support and inspiration sent directly to you from Shine Forward With Dravet.
Daily Sibling Support
Give Them a Role
Many siblings of children with Dravet syndrome want to be involved in the care of their brother or sister. Consider giving them an age-appropriate task that they can do to help. Whether it’s grabbing a blanket or writing down the time a seizure started, giving the sibling something to do can help them feel more involved.
Today’s Tip From Other Caregivers Like You
Take Care of Yourself
It’s okay if the laundry is piled up. It’s not a big deal if there are dishes in the sink. It’s all right if you cannot cook dinner. Find something easy and make time to take care of yourself so you can recharge your body and mind. You can order pizza or buy a bag of chicken nuggets to stick in the freezer for those days that are just hard. Don’t ignore your own health and needs.
Find out about fun activities other parents
and caregivers are doing with their child
with Dravet syndrome
Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet
Find out about fun activities other parents
and caregivers are doing with their child
with Dravet syndrome
Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet