Siblings share an unbreakable bond. Therefore, the impact of Dravet syndrome can be especially hard for brothers or sisters of children diagnosed with Dravet syndrome. We hope to strengthen that bond by providing helpful information for every child in the family.
Siblings share an unbreakable bond. Therefore, the impact of Dravet syndrome can be especially hard for brothers or sisters of children diagnosed with Dravet syndrome. We hope to strengthen that bond by providing helpful information for every child in the family.
A study of siblings from ages 9 to 12 found that most worried about the future of their sibling with Dravet syndrome. Some children expressed being afraid for their brother or sister who has Dravet syndrome. And some worried about being a burden or adding extra stress to the family. That’s why it sometimes may feel like you have to dig a bit deeper to find out how siblings are really feeling, even when they say they’re fine.
Children who have a brother or sister with Dravet syndrome learn the importance of being patient and compassionate for others at an early age. But they also may be affected in ways that aren’t so positive.
Studies show that siblings of children with rare conditions like Dravet syndrome often experience high levels of stress, anxious feelings, or fear. Some common challenges siblings face during their day-to-day lives include:
Feeling Unhappy
At least 47% of siblings reported they were unhappy.
Nightmares
Up to 49% of siblings reported having nightmares.
Depression
35% of adult siblings said they were clinically depressed.
Here are a few signs of depression and anxiousness that medical professionals and therapists recommend you look for in a sibling of a child with Dravet syndrome:
Get tips on ways to help
siblings cope with the impact of
Dravet syndrome
Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet
Get tips on ways to help
siblings cope with the impact of
Dravet syndrome
Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet