Matias, 5, with his mom

Your advice matters! It will help the community better support those living with Dravet syndrome each day. Was there something you wish you had known in your child’s early experiences with Dravet syndrome? Do you have advice on how to communicate with siblings? Or maybe a fun activity idea that other families will enjoy, too? By sharing a little advice today, you can help support a family like yours tomorrow.

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Thank you!

Thank you for signing up for Shine Forward With Dravet. We will be reaching out from time to time with helpful tips, inspiration, and resources for managing life with Dravet syndrome.

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Download the Dravet Syndrome Sibling Support Plan

Thank you!

Thank you for signing up! The Dravet Syndrome Sibling Support Plan was created for parents and caregivers to start conversations with the teachers and school administrators of their children without Dravet syndrome.

Download the Dravet Syndrome Sibling Support Plan You can find information on Dravet syndrome created for healthcare professionals by visiting DravetUrgency.com

Thank you!

Thank you so much for telling us more about yourself and your loved one! We encourage you to share your advice with other Dravet syndrome families at shineforwardwithdravet.com/share-your-advice.

Connect with other Dravet syndrome families on our Facebook and Instagram pages.

Find out how Dravet syndrome
can affect everyone in the
family differently

Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet

Find out how Dravet syndrome
can affect everyone in the
family differently

Get support and inspiration from
other parents and caregivers from
Shine Forward With Dravet

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